Monday, January 27, 2014

Ugh. I'm an epic fail.

So, it just dawned on me that I can write more, and it doesn't have to be directly related to epilepsy.  There are so many parts of our lives that have been touched by this godawful condition.  I should do a better job of documenting it.  Also, the kiddo isn't the only one with a chronic medical condition.  Two years ago, I was diagnosed with fibromyalgia, and there are times that I wish I had a place to vent my frustrations.  I don't want to start another blog, since I fail at keeping this one updated.  I swear I'm going to do better.

So, the kiddo is doing well.  She had a check-up with her neuro a few months ago and a routine MRI, which came back as normal.  She goes back to her neuro in about six weeks for another check-up and a routine EEG.  She had a virus a couple of weeks ago, but she came through that okay.  Her fever freaked me out a bit, but she came through it like the champ she is.

She started music therapy through her school last week, and I couldn't be more excited.  It's called The Listening Program, and it's through Advanced Brain Technologies. She participates every single day for fifteen minutes.  The program focuses on neuroplasticity. Even as I'm typing this, I'm becoming emotional.  The program could have been designed for her.  It helps kids with sensory issues, autism spectrum disorders, speech delays, motor issues, and learning delays.  All things that she has struggled with since her seizures started. She's struggling in school.  Her memory was affected by her last seizure; and this program could help her rebuild her memory.  What this could mean for her...it gives me goosebumps.  I truly believe it could help her, and it gives me hope. Hope is the best thing.  

She's growing, and she's beautiful.  Every so often I look at her, and I catch a glimpse of her at sixteen.  She is absolutely magnificent, and I'm so lucky to be her mom.  

Sorry for the super emotions tonight.  I attended a very emotional staff development today.  I'm all in my feelings.