My thoughts, rants, and experiences regarding epilepsy and the stigma attached to those who have it. Seven years ago, my daughter was diagnosed with epilepsy, and it has been a wild ride. I decided my experiences and knowledge just has to be able to help someone, so here I am.
Tuesday, September 24, 2013
As I'm sitting here, typing this out on my iPhone in a hospital waiting room in Ft. Worth, Texas, Liz is having a MRI ran on her brain. Nothing bad happened to lead us here. In fact, this has been scheduled for six months, and she has her check up with Dr. H this afternoon. It's just...any time that she has to be sedated, any time that she has to have any invasive medical procedure done, I'm scared, sad, resentful, and a crying mess.
Let's be clear, I know it could be so much worse, but I can't help the fear. I just want this horrible condition to go away and leave everyone alone. Epilepsy steals things from you, especially when you've let your guard down. There's no words for the level of hatred I possess towards epilepsy.
Liz asked me to wear my Epilepsy Stinks shirt today. How on earth could I say no?
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